We headed back to Dr. Pediatric Cardiologist today and learned more about Miss Banana's heart--apparently her surgery will be "trickier" because of the way the tissue is and with some narrowing of some arteries, she will possibly need more heart surgeries as life goes on. Right now Miss Banana's weight gain (or lack thereof--she was still 10 lbs. today) is holding her back from surgery. Dr. Pediatric Cardiologist will have a meeting of the minds on Monday with all the other docs/surgeons at Children's and will book the surgeons then. So the wait for a surgery date continues until Monday.
I'm a Midwestern girl who's lived in Missouri, Utah, Missouri again, Nebraska, Mississippi and Iowa. This is my story of life with my farmer-turned-professor husband, two exceptional little boys, and one extraordinary little girl who happens to have Trisomy 21, or Down syndrome. The stories you are about to read are all real; I couldn't make it up if I tried.